26 weeks 5 days

Hi there,

Just thought Id write a line or two. Not really sure about how to get this blog site up and running. Mmmm, this will test my technical abilities! Ouch!! I dont even know how to work out how it looks like to the outsider/public. Sorry guys if its not very exciting!

Anyway, am starting to feel a bit better about Lewis. I have been in touch with one family Claire and Jordan Griffin who have recently had a little boy Maximus. Maximus had left sided hernia with most things up there. He seems to be going great guns. This of course, really gives me some hope again. I emailed Claire and she said Max’s heart was also pushed to the far right like Lewis’s and he still had an almost full right lung. Again more hope!!
Its really important to stay in contact with the right people on this journey. I really need to stay positive and hear more and more survivor stories. Its no good for me or for Harry or Anthony if Im in the dulldrums re: the pregnancy which has been the case in the last few days. Here’s to being more positive!!

 

Intro and Welcome

Hi There,

Ive decided to start a public blog regarding my baby’s CDH Journey. My second child who is in in utero has been diagonsed with Congenital Diaphragmatic Hernia. His hernia is on the left side and this is the most common which occurs in 85-90% of the cases. It is called a Bochdalek Hernia or is also known as a classical postlateral defect. He was diagnosed with this condition at my rountine 19 week ultrasound. In some ways its a blessing that it was found because at least we can be prepared enough to have our baby at a tertiary institution. Prior to this we were booked into the private system and they are not equipped for my baby’s needs as he will most likely be in serious respitarory distress when he is born.
Basically, the organs that have migrated into my baby’s chest cavity are his stomach, bowels and spleen. His heart has also been shifted to the very right side of the chest cavity.

 

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